Each spring, dystonia advocates from across the country gather in Washington, DC for a two-day advocacy event. During this time, participants receive updates on dystonia research from leading investigators, comprehensive advocacy training, and the opportunity to network with other dystonia-affected individuals from across the country. Dystonia Advocacy Day culminates with a trip to Capitol Hill so that participants can meet with the offices of their Members of Congress and urge their support on key legislative issues.
This event is the dystonia community’s opportunity to make its collective voice heard throughout the halls of Congress and it is always well attended by individuals with all forms of dystonia. Without exception, volunteers who have participated in these in the past have found Dystonia Advocacy Day to be an incredibly rewarding and empowering experience.