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2012 Dystonia Advocacy Day Registration Form

Event Information

We invite you to register for the 2012 Dystonia Advocacy Day. Tuesday, May 8th will feature an afternoon of Advocacy Training and Legislative Review followed by dinner at the Four Point by Sheraton Washington D.C. Downtown. On Wednesday, May 9th all advocates will spend the day on Capitol Hill. We will conclude on Wednesday by 5:00 pm. In addition to sharing your personal story, you will urge Members of Congress to take action on important initiatives, like funding federal dystonia research activities. The DAN Position Paper, Talking Points and Backgrounder will be sent to you in advance of your trip.

Registration Information

There is no fee for this event, but all advocates need to cover their transportation and lodging expenses. Dinner on Tuesday night and Breakfast on Wednesday morning will be provided. As the deadline for reserving hotel rooms is April 11th we ask that you register with DMRF no later than Friday, April 16th.

Hotel Information

Four Points by Sheraton Washington D.C. Downtown
1209 K Street NW
Washington, DC 20005
(202) 289-7600

Four Points by Sheraton Washington D.C. Downtown is conveniently located on the K Street business corridor and within walking distance of the revitalized Penn Quarter arts and entertainment district with its many galleries, museums and the Verizon Center.
Additional information about the hotel can be found at http://www.fourpointsdc.com/

The special room rate for advocates is $270 (plus tax) for a single or double. This rate is guaranteed until April 16, 2012. Please note all room reservations are being made by DMRF – there is no need for you to contact the hotel. Confirmation numbers will be provided for you prior to the event. Please let us know if you need a specially equipped or positioned hotel room and also if you have any dietary restrictions.  We also need to know if you require accessible transportation from the hotel to Capitol Hill on Wednesday morning.


The Four Points by Sheraton Washington D.C. Downtown is accessible from Reagan National Airport (DCA), Washington Dulles International Airport (IAD), and Union Station (if you arrive via train). The hotel does not offer shuttle service, but does offer valet and overnight parking for a fee of $38 (plus tax). From DCA cabs are recommended and a one-way ride is about $20. From Dulles cabs are available for approximately $60 (sharing encouraged). The closest Metro Station is the McPherson Square Station (0.2 miles from the hotel). Transportation from the hotel to Capitol Hill will be provided for all advocates on Wednesday morning.


Business casual attire is appropriate for the two days. For Advocacy Day on Wednesday comfortable walking shoes are highly recommended.

Tentative Agenda

DAY 1:  Tuesday, May 8th

1:00 PM to 3:30 PMNew Advocate Training 
First time being an Advocate?  Not to worry.  Our Washington, D.C. Liaison, Dale Dirks and his team from the Health and Medicine Counsel of Washington will lead us in training. Veteran advocates are more than welcome to attend this training session, too, as a refresher

4:00 PM to 5:00 PMLegislative Priorities Review
Meet your fellow team members and review the DAN priorities that we will present on Advocacy Day

6:00 PM to 8:00 PMDinner at the Four Points by Sheraton Washington D.C. Downtown

Featuring special guest speakers

DAY 2:  Wednesday, May 9th

7:00 AMBreakfast at the Four Points by Sheraton Washington D.C. Downtown
Review our legislative agenda and get energized for your day on the Hill

8:30 AM to 5:00 PM - Capitol Hill Visits


Please click all that apply:
ST/Dystonia, Inc.

Please click all the sessions that you plan to attend:

Tuesday, May 8th
New Advocate Training (1:00 p.m. to 3:30 p.m.)
Legislative Priorities Review (4:00 p.m. to 5:00 p.m.)
Dinner w/ Special Guest Speakers (6:00 p.m. to 8:00 p.m.)

Wednesday, May 9th
Breakfast (7:00 a.m.)
Capitol Hill Visits (8:30 a.m. to 5:00 p.m.)

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If you have questions, please e-mail Julie Mack

If you would prefer to register via mail or fax, please download this Word Document version.